We are Glad to Announce Our Partnership with local Charity the Dorset Childrens Foundation.
DCF aim improve the lives of sick and disabled children by providing financial support towards medical expenses, therapies, equipment and life-enriching experiences not normally provided by The NHS. Since 2013 the Charity have raised over £340,000 for sick and disabled children around Dorset.
So Far The Shirt Framing Service has Framed and Auctioned a Selection of Memorabilia helping to Raise over £1000 and donated £170 direct to support the DCF. The Majority of this are items from AFC Bournemouth who selected and The DCF as one of their partnered charities for the season 2017/2018. Some of the Items include fully signed home and away shirts and footballs.
Presentation of a Signed AFC Bournemouth Shirt Autumn 2017
One of the Children who the DCF supports is Noah Stevenson, You can read his story and find full contact details for the DCF below All donations and help is welcomed through the charity. The Shirt Framing Service will strive to bring local sports and Charities together to help those in need.
Noah was born ‘Normal’, however at 2 weeks old he started having seizures! At the hospital after lots of testing they discovered he also had a heart condition, Bicuspid Aortic stenosis. He had his first heart procedure at 10 months old, where they used a balloon to widen a valve. He has regular cardiac checks and will require openheart surgery in the future.
Noah has an unsafe swallow, meaning any swallowed liquid ( including his own saliva) can end up in his lungs, drowning him. He has been tube fed since he was 5 months old. He got a permanent feeding tube put into his tummy at 11 months old.
Noah had an MRI performed at 5 months old, at first they thought he had a cyst on his cerebellum, however after discussing with a neurosurgeon they realised that actually there wasn’t a cyst, however it was an empty area of brain as his cerebellum was under developed.
After more testing it was determined that Noah actually suffered from a very rare genetic condition called Pontocerebellar Hypoplasia. His cerebellum and pons are both underdeveloped. We only know of about 10 families in the U.K. ATM with this condition. It is a life limiting condition, meaning Noah is in expected to make it past childhood.
His PCH means that he is affected physically in many ways.. he is unable to eat or drink, walk, talk, sit unaided. He doesn’t have much control over his body due to muscle spasms, he has a visual impairment and we aren’t sure how much he can actually see.
He is under review for sleep apnea ATM, due to his airway collapsing when asleep and sats dropping.
Noah takes ALOT of medications daily to manage all of his symptoms, he also requires a lot of mobility aids to make his life manageable.
However despite all his conditions and daily struggles Noah is the best, happiest, lovable little boy ☺☺🌈❤
List of conditions:
Bicuspid Aortic Stenosis
Dyskinesia movement disorder with Dystonia
Global development delay
Episodes of vomiting with intermittent blood
Cortical Visual impairment
DCF is always looking for donations and volunteers for more information please contact the charity through their details below.